Saturday, July 30, 2011

Big News!

BIG News!

Friday, July 29, 2011

What we've been up to

Life's a beach. I had to catch her movements for posterity. I need to remember each little step.

Wednesday, July 20, 2011

Poopaggedon

Ok, so anyone with a baby or toddler knows the fear of taking their kiddo to the pool or pond in terms of them wearing a swimmie diaper. What if there's a poop? And what if it, GASP, leaks?
Well, it happened to us over the weekend. And it was all the nightmare I thought it would be and more.
*sigh*
We were visiting my in-laws in Connecticut and we decided to take the kids to the pool and kiddie pool at their fancy country club. Paige loves it there. The kiddie pool is all fenced in, clean, large, and had lots of lounge chairs under a covered area for the moms to relax under while keeping watch. It's only 12 inches in the deepest part so kids love to frolic. It's also has the kind of posh clientele I'm just not used to. At all. I always feel so sketchy there, like a frumpy dork. So, that sets the tone for the story.
After an hour of splashing and mock swimming, I noticed Paige was getting extra vigorous in the water....standing up and then throwing herself backwards onto her butt (wrestling style) so there would be huge splashes around her. She did it a bunch. And then she came out of the pool and did it on the concrete pool deck. That's when I saw them...2 "bunny balls" came flying out the top of her diaper and landed on the deck. I saw it in slow motion like in the movies. I ran over and said, "awww shit shit shit!!!" And began scrambling to pick it up with baby wipes. My heart was RACING. A woman in a fancy straw hat and caftan nearby said "It's in the pool too! I have to tell the lifeguards!" (she said it with such disdain and disgust it reminded of me of first grade when some little douchebag said "I'm gonna tell on you!") Anyway, I look in the pool and there were a few floating bunny balls so I dove right in and scooped out what I could see.
Cue the lifguard who told us all we had to leave the kiddie pool so that they could add more chlorine and such...it would have to be closed for the next hour. (Up until this year, it would have been closed for the DAY, but the health codes have changed).
The other moms seemed annoyed by the inconvenience and gave me the hairy eyeball. I did go around and apologize to each of them. Luckily most said "hey, it happens." But none were happy or tried to make me feel any better.
Sweating and heart-racing, I brought P to the changing room to take care of business and it was THE BIGGEST FRIGGIN POOP SHE HAS EVER DONE. AAAAAAGGGGGGGHHHH!!! *cue the horror movie music.*
I ripped off the damned diaper and shit landed everywhere. Then I noticed it was up her swim shirt, all over the swim bottoms, up the front, etc. Let's just say I was freaking the hell out and began to shake. I mean, I'm in the Taj Mahal of changing rooms. What if someone came in and saw the poo-scene from hell? I worked quickly but it took about 20 minutes to clean Paige, clean the area, and restore peace. In a dose of luck, nobody came over where we were to witness the scene. Thank you, Lord.
Paige was in great spirits during all of this and I could barely keep her still. She was wriggling, dancing, moving around. She made the poo mess so much worse.
*sigh again*
When it was all said and done, I wanted to pass out. But the pool re-opened at noon and we sheepishly re-entered the kiddie pool. Sure, I wanted to melt into the pool deck and die after I heard people talking about it later on. "Did you hear the pool was closed? Gross!" Or the little kids "I heard a kid pooped in the pool, eeeeeeeew!" etc. etc.

Note to self: Try to wait for your kid to poop BEFORE you go to the pool. If possible.

Monday, July 18, 2011

Thank you

playing
Here is Paige playing pretend all by herself (a big deal for her!) She set up the figures in the chair all on her own and got out her little spoon and began "feeding" the figures from the picnic on the little table. I couldn't resist taking a photo of it. Up until now, I've had to assist, encourage, and facilitate this kind of playing.


I wanted to thank everyone for their kind comments of support on my last post; it felt good to feel the strength coming from you guys! I appreciate your kind words and advice; it is so heart-warming and uplifting. Thank you!!!
We are in a holding pattern on our end as we wait to hear from the place about giving Paige the hours of intervention she needs; I'm hoping to start as soon as possible so we don't keep losing time. There's a lot of hurry up and wait that goes on. It can get frustrating! In the meantime, we are enjoying the summer. We've been enjoying swimming the most I would say. Paige is going to be a little fish one day. I'm a horrible swimmer, so hopefully she got Chris' swimming genes.

I turned 33 the other day, and to celebrate we went and saw the new Harry Potter movie; which I loved. I liked all the books AND the movies. I sure did love that last movie though...very exciting! Don't you love a good movie? I want to go and see it in 3d now too. I guess that makes me a dork; so be it. At least I didn't dress up in costume for it. Although I don't blame those that do. To each their own!

Among my birthday gifts, Chris gave me a night at a fancy resort in Ogunquit, Maine (a Sunday to Monday) to go by myself and luxuriate at the spa, sleep when I want, eat when and where I want, and read. I plan to lay by the pool and read when I'm not sleeping or eating. LOL. He's such a good egg; he knew I needed a little space and time to myself and he delivered. What a nice surprise it was, and I can't wait to go! Now I just hope for good weather! Although, they have beautiful indoor spaces to enjoy if it's raining and it would be just as relaxing.
I can't stop daydreaming about it.
So, there's the update for now! I'll be back tomorrow to tell you about a recent experience I have dubbed "Poopaggedon." How's that for a cliff-hanger?

Wednesday, July 13, 2011

The Road Bends

Hi friends!

Last week we brought Paige to see a developmental pediatrician (after months of waiting for the appointment). She was diagnosed with PDD-NOS (an autism spectrum disorder). Even though we were prepared, it still felt like a shock when the doctor said those words. You can only prepare so much until something becomes real. You know?
The doctor told us more about it. Pervasive Developmental Disorder is the overarching umbrella (soon to simply be called Autism Spectrum Disorder). Underneath it are a few different disorders including Autistic Disorder, Asperger syndrome, and Pervasive developmental disorder-not otherwise specified (what Paige has). It's a developmental disorder, but she doesn't fit in the autism category nor does she fit in the asperger category. So, she's in a short of "catch-all" category. Her delays were found to be in communication and social skills. Her academics/cognitive skills seem to be ahead, so that is helpful for her. The doctor recommended between 10 and 15 hours per week of floortime treatment with a behavioral specialist (who comes to our house) in addition to her 3 hours of Early Intervention treatments. sigh. It's a lot. I have to figure out how to fit it all in. It could be worse, but still isn't something you plan on, you know?
It's not what we pictured.
The social worker who coordinates Paige's "case" told me a story a mother of an autistic child shared with her. She said that finding out your child is autistic is a little like you were planning on a trip to Paris. You pack, you plot, you plan and you get your tickets. You fly across the globe in excitement. The plane lands and you find yourself in Amsterdam. It wasn't what you planned. It is a cool place, and ends up being a blast. But it just wasn't what you'd imagined your trip would be. But it ends up working out and you have a great time.
I'm so happy that Paige is going to be getting the extra help she needs to make the connections she needs to make. The doctor is confident that she will flourish with this additional therapy and that perhaps her disorder will be undetectable by the time she begins school. Here's hoping!
I'm just sad that our precious Little P has this challenge placed on her little shoulders. But she's so happy-go-lucky and loves having everyone come to play with her all the time. She certainly doesn't see it as a hassle; she doesn't know any different.
We've had family members asking for clarification on what Paige's main challenges are. She seems so typical to most. Among some other things, she has trouble "generalizing her skills." She HAS the skills she needs but has trouble using them in a quality and effective way in terms of communicating her needs and wishes. Her learning, her play skills, etc. are affected. I came up with a metaphor to further clarify. Imagine you have a piece of wood with a nail in it and someone shows you how to drive in the nail with a hammer. Now, imagine you ALSO have a rock and a mallet, but someone takes away the hammer. NOW how do you drive in the nail? Most people would automatically make the connection that you can use the rock or mallet to drive in the nail. But Little P would likely sit there and stare at the tools and not understand that she can ALSO use those to do her work. The house doesn't get built without the hammer. Until someone comes and SHOWS her that she can use the rock or mallet. Then she's all set. Would she make the connection eventually? Probably. But it would take a long time (thus causing delays). So, people will be coming to help teach her about making these connections through play. The hope is that soon she will be able to make these connections all by herself without extra help. They will also be helping her with her communication skills and general play skills (that pave the way for future learning).
In the meantime, I'm still wrapping my head around this whole thing and wondering what the future will bring. We will make lemonade out of lemons; that I can be certain of. The other thing I can be certain of? How much I love Little P to the moon and back. That she is the best thing to ever happen to us. And that none of this changes how wonderful, special and perfect she is. She's our little star and we're so lucky she's ours.
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Friday, July 1, 2011

Writing Style

Hi friends!
I've totally abandoned this space, it seems. sigh. Well, we've been enjoying the summer in these parts! We got a membership at a local pool so that Paige can go and splash around to her heart's content; and the rest of the time has been spent in her therapies or going to playdates (or running errands and playing) The time just seems to fly and get away from me!
In case you missed it, I added an update to my last post about my toy reduction experiment. You'll see it went well and is something I plan to continue. For children with sensory processing issues, it seems to help the "overwhelm factor" to a minimum. Love it!
Onto what's on my mind:
When I noticed I hadn't written in a while, I took some time to think about why that is. Aside from being generally busy and too tired to make it a priority, I think it also has to do with the fact that I've been struggling to figure out what my writing voice should be here. I want to sound like myself here, but also don't want to offend people. I want to inspire and uplift and not turn anyone off. But, at the same time, I like to joke around, swear, and complain in a funny way about things. I have found that I censor myself all the time and I end up feeling like this blog doesn't always feel like MINE. Sometimes it does, sometimes it doesn't. I want to come to this space and say things the way I think them and stop trying to make it sound like someone else wrote it. Do you know what I mean? I can't keep trying to please everyone. I'd like to start making it markedly MY OWN and add the candid silliness that I crave. It's my creative outlet, after all. So, that's what I'm gonna do. Sound like a plan? OK, that said, I will be back here soon. Hopefully the posts will be more frequent and more ME.
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